Purple Day
- cabrams72
- Mar 26
- 4 min read
The Origins of Purple Day
In 2008, nine-year-old Cassidy Megan from Nova Scotia created Purple Day, also known as World Epilepsy Day. Cassidy was motivated to raise awareness and lessen the stigma associated with epilepsy because of her own experience with the disorder. With the help of the Epilepsy Association of Nova Scotia, a non-profit organization dedicated to improving the lives of people with epilepsy, and the Anita Kaufmann Foundation, a global epilepsy advocacy organization, Purple Day gained international recognition in 2009.
What Is Purple Day?
Purple Day, a global initiative founded in 2008 by Cassidy Megan, raises awareness about epilepsy and supports those affected by the condition.
Why Purple?
Cassidy Megan initiated the "purple wave" to raise awareness about epilepsy. On March 26, people worldwide are encouraged to wear purple, decorate their homes, and share graphics on social media to promote awareness and support for those with epilepsy. This universal color has become synonymous with epilepsy awareness.
The Significance of Purple
Purple, specifically lavender, was chosen for the epilepsy movement due to its association with reflection, peace, and spirituality. It symbolizes isolation and hope for understanding among those affected by the condition. Lavender's soothing properties resonate with the calming effect of awareness on those affected. This choice has created a strong visual identity and fostered community among participants.
The Power of Purple: A Symbol of Unity and Understanding
Purple Day, a global initiative founded in 2008 by Cassidy Megan, symbolizes epilepsy awareness. Lavender, a shade of purple, represents the isolation and struggle experienced by those living with the condition. Donning purple on March 26, individuals worldwide create a visual representation of support and understanding, breaking down stigma. Purple Day serves as a platform for education, advocacy, and community building, helping to dispel myths and reduce the stigma associated with the condition. It has become a catalyst for year-round efforts to improve the lives of people with epilepsy.
The Evolution of Purple Day: From Local Initiative to Global Movement
Purple Day, a grassroots movement that began as a local event, has grown into an international awareness campaign, showcasing the power of grassroots movements in the digital age, with its global impact surpassed by Cassidy Megan just over a decade later.
Historical Development
Cassidy, diagnosed with epilepsy at a young age, sought to raise awareness about her condition and the social stigma it often carries. She approached the Epilepsy Association of Nova Scotia with the idea of an awareness day, which was embraced and observed in Nova Scotia. The simple concept of wearing purple to show support and start conversations about epilepsy made it easy for people to participate and spread the word.
Current Relevance and Importance
Purple Day, observed in over 85 countries since 2024, has grown significantly, raising awareness and reducing stigma. Its global reach has been enhanced by the rise of digital participation, with social media campaigns and virtual events becoming more prevalent. This shift has allowed Purple Day to reach a wider audience, transcending geographical boundaries and language barriers, demonstrating its adaptability and success.
Global Participation and Impact
Purple Day is an international initiative celebrated worldwide, including lighting famous landmarks in purple and promoting school-based educational programs. In the US, the Empire State Building is lit in purple, while community walks and fun runs are popular in Australia. This global participation has reduced stigma and improved support for those with epilepsy, as a study by the International Bureau for Epilepsy found that countries where Purple Day is actively observed increase public awareness of epilepsy and decrease negative attitudes towards the condition.
Role in Reducing Stigma
Purple Day has played a significant role in dispelling the stigma surrounding epilepsy by encouraging open conversations and providing accurate information. It has been instrumental in dispelling numerous myths and misconceptions about the condition, leading to a deeper understanding and increased support for those living with it. As Purple Day evolves, its importance in epilepsy awareness remains undeniable, serving as a day of recognition and a springboard for year-round efforts to improve the lives of those affected by epilepsy.
Understanding Epilepsy: Breaking Down the Basics
It is essential to have a thorough grasp of epilepsy to comprehend the significance of Purple Day. The neurological condition known as epilepsy is typified by frequent, spontaneous seizures. It is one of the most prevalent neurological disorders in the world, affecting over 50 million individuals. These seizures are triggered by abrupt, aberrant electrical activity in the brain, and depending on the area of the brain affected, the symptoms can vary significantly.
Common Misconceptions and Myths about Epilepsy
Despite its ubiquity, there are still misconceptions regarding epilepsy, which can lead to stigma and discrimination. To dispel these myths, Purple Day is necessary. Among the common misconceptions are
Myth: Convulsions are involved in every seizure.
Reality: Seizures can manifest in many ways, from brief lapses in awareness to complex behaviors.
Myth: Epilepsy can be transmitted.
Reality: Epilepsy is a neurological disorder and cannot be transmitted from person to person.
Myth: People with epilepsy cannot lead normal lives.
Reality: With proper treatment and management, many people with epilepsy live full, active lives.
Myth: When someone is having a seizure, you should shove something in their mouth.
Reality: This is dangerous and unnecessary. The best action is to ensure the person's safety and comfort during the seizure.
Myth: Epilepsy is categorized as a mental illness.
Reality: Epilepsy is a neurological disorder, not a mental illness, although it can have psychological impacts.
Myth: Epilepsy is a server life long illness that is not treatable
Reality: In some cases childhood epilepsy can resolve with age or decrease over time. “My Dad and aunt both had childhood epilepsy. My Dads got worse in middle school but resolved with treatment by the time he was in college. My aunt continues to struggle with a variety of symptoms throughout life.” – Dr. Marybeth Heather
Mugumbate, R., Klevor, R., Aguirre, M. O., Daniel, G. M., Yaqoob, N., Acevedo, K., Yewnetu, E., Kanyabutembo, C., Ibrahim, E. A. A., Boutadghart, S., Janneh, A., & Kissani, N. (2023). Epilepsy awareness days, weeks, and months: Their roles in the fight against epilepsy and the intersectoral global action plan on epilepsy and other neurological disorders. Epilepsy & Behavior: E&B, 148, 109457.
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